National Congenital Anomaly and Rare Disease Registration Service. Congenital anomaly statistics 2022

Product Description

In April 2025, NCARDRS turned 10 years old, and with this report, provides national data for the 5th consecutive year. In a decade, congenital condition registration coverage has increased from 22% of births in England in 2015 to providing national coverage for over 5 years.

This publication, the eighth annual congenital condition statistics report released by the National Congenital Condition and Rare Disease Registration Service (NCARDRS), part of the National Disease Registration Service (NDRS) in NHS England, contains information on congenital conditions detected in babies delivered in England between 1 January and 31 December 2022.

This report is based on curated and quality assured congenital condition registration data as of 1 July 2025.

Spreadsheet data tables with detailed estimates, a technical details document and a spreadsheet describing how ICD-10 codes are aggregated into each condition subgroup can be found on the accompanying CD-ROM.

The counts and rates of congenital conditions are designated as Official Statistics. Counts and rates are presented for England, for the 9 former Government Office Regions and by the 42 Integrated Care Boards (ICB) as well as by age at delivery, Index of Multiple Deprivation (IMD) quintile, and timing of detection. Counts and rates are presented by major condition subgroup and more granular groupings or counts for individual conditions are also available.